How romance novels got me through the grief of my double mastectomy (2024)

In April 2021, the Bluetooth blunder all romance readers fear most happened to me in while I was in the hospital recovering from a preventative mastectomy.

With COVID-19 vaccines still difficult to come by, I spent most of my hospital stay alone in a dimly lit room, plowing through the array of romance audiobooks that I had downloaded onto my iPhone.While the nurse was checking the status of my surgical drains, my traitorous phone disconnected from my Bluetooth headphones and amplified my audiobook throughout the room. Though not a steamy scene, it was a romantic scene. Characters were sharing furtive glances, imagining what would happen if they closed the distance between them and shared a kiss. It certainly wasn’t a moment I would’ve chosen to play on speaker.

“Fun! A book,” my nurse said, completely unruffled. She was a total pro. Meanwhile, I rained apologies all over her as I fumbled with my phone.

Once she was gone, I searched my bed for my rogue earbud, careful to avoid movements that sent searing pains through my chest. Then, the voice beside me asked, “What book was that?”

Those were the first words exchanged with my roommate behind the curtain. Before that, she’d merely been the person responsible for the occasional whir of a bed raising and lowering on the other side of the pink curtain separating us. I rattled off all the books I’d downloaded for my hospital stay: “Take a Hint, Dani Brown,” by Talia Hibbert, “You Deserve Each Other” by Sarah Hogle, and “The Happy Ever After Playlist” by Abby Jimenez. “Oh, those are on my list,” she said. “I read romance, too.”

Like so many women, I read romance novels in 2020. I mean dozens. Heaps. I had romance coming out of my ears. I simply couldn’t get enough of their happy endings and incendiary arm grazes replete with yearning. I only had time for novels where good things happened to good people and heroines spoke freely about their bodies and their sexualities. Unlike most women, however, I wasn’t only reading romance during the early days of COVID for a mental vacation from the indignities of driving to a far-flung Target in search of single-ply toilet paper based on a questionable NextDoor tip. (Though that was certainly a bonus). I was reading romance to soothe my heart and mind as I prepared for a preventative double mastectomy and weighed the pros and cons of sparing my nipples.

Being a carrier of the BRCA 1 genetic mutation puts me at a significantly higher risk of developing breast cancer and ovarian cancer in my lifetime. Back in 2020, all tests indicated that I was healthy and cancer free. Still, I couldn’t shake the “what if.” Namely: What if I waited too long and missed my chance at a cancer-free life? So, on the advice of my doctors, I began the overwhelming process of planning my double mastectomy.

How romance novels got me through the grief of my double mastectomy (1)

Redesigning your own breasts within the (decidedly unsexy) bounds of medical science is an odd task. While so many people who undergo this procedure have little choice in the matter, I was choosing everything: the date, the material, the size and the shape of my new, artificial breasts. I was even choosing whether to lose or keep my nipples, a decision that comes with some potential medical risks. Turns out that if you are planning a prophylactic mastectomy, the world is your oyster — but only if you enjoy oysters as I do, which is to say, you don’t at all and think they look a bit grisly set on ice in the middle of a picnic table.

Each of these decisions is deeply personal, and therefore, deeply isolating. A person’s relationship to their breasts and their component parts isn’t exactly virtual happy-hour fodder. (Again, this was early 2020, when we still attended gender reveal parties via Zoom, and I would slip conversational nipples into small talk while the party waited in gallery view for the appearance of a blue or pink cupcake.) So, as I fixated on the pros and cons of nipples while faced with a life without physical sensation in my breasts, I turned to the only women I knew who were equally as eager to discuss their breasts: women in romance novels.

While the romance genre varies widely in its depictions of sex — from the mere implication of intimacy to explicit on-page descriptions — it is mostly consistent in the ways it centers women’s physical experience of sexual attraction and desire. I’ve read countless descriptions of women noting specific states of nipple arousal upon meeting the strapping hero or striking heroine — from perky to pinched, purpled to pebbled, puckered to even plumped. Whereas most women don’t pay close attention to the pair of nipples on their chest, the nipples of romantic fiction all seem to have lives of their own — in part, because authors rarely shy away from depicting their heroine’s physical experience of attraction. As a result, their characters feel empowered by their sexuality, not embarrassed of it, and they can embrace it boldly and without shame.

In reading about these women, whose struggles, zip codes and sometimes charmingly impractical day jobs weren’t like my own, I reveled in how they were each boldly taking control of their sexuality and being rewarded for it. They were looking for love, yes, but they were also searching for identity and self-acceptance. These women were teaching themselves that love was a worthwhile pursuit and that they were worthy recipients of it, exactly as they were.

After my diagnosis, I’d begun to resent my breasts. I found myself slumping in my chair and gained an affinity for sleeveless summer turtlenecks. I looked at them in the mirror with anger and dread. They were my enemy. And though I was mounting a preemptive attack, I blamed them for forcing my hand. But reading romance — a genre brimming with optimism and frank discussions of women’s bodies, self-love, and pleasure — gave me permission to see my breasts as more than ticking time bombs. They gave me the language I needed to discuss my own relationship with my body and what I was afraid of losing: beauty, sensuality and self-confidence.

How romance novels got me through the grief of my double mastectomy (2024)

FAQs

How romance novels got me through the grief of my double mastectomy? ›

They gave me the language I needed to discuss my own relationship with my body and what I was afraid of losing: beauty, sensuality and self-confidence. Romance authors didn't punish, minimize or deride the women in their novels for wishing to feel sexual and for wanting to love themselves and their bodies.

What are the emotional effects of a double mastectomy? ›

After a Mastectomy

And for many survivors, this can be the most difficult part of the diagnosis. Loss of positive self-image is among the most common emotional effects women confront after a mastectomy. Many survivors report that they feel less attractive and feminine, especially in the eyes of their partner.

How to emotionally deal with a mastectomy? ›

You may have feelings of fear, sadness, or anger. Ask for help from family and friends. You may wish to speak to an Oncology Nurse from the Breast Cancer Program. Feel free to ask questions to help you understand your diagnosis, treatment and decision-making.

How do I love my body after mastectomy? ›

Finding acceptance after a mastectomy
  1. Really look at your body. ...
  2. Reflect on your resilience & progress. ...
  3. Focus on living a healthy life. ...
  4. Change the outfit not your body. ...
  5. Fake it until you believe it. ...
  6. See yourself through the eyes of someone else. ...
  7. Make time for self-care. ...
  8. Never give up.
Aug 8, 2018

How do men feel about a mastectomy? ›

A loving partner would be saddened not because he or she thinks breasts are the end-all and be-all of female sexuality, or that a woman's worth is related to her body parts, but rather because such surgery strikes so visibly and painfully at the heart of a lot of shared stories, intimate moments, mutual devotion, and ...

How traumatic is a mastectomy? ›

The procedure of the mastectomy is perceived as a traumatic event resulting in a state of a psychological stress and often, also various mental disorders (anxiety and depressive symptoms), low self-esteem, and so forth [10,11,12,13].

Do you ever get feeling back after a double mastectomy? ›

Nerves regenerate over time, which can lead to regaining sensation in the chest and breasts. Many plastic surgeons who perform breast neurotization report that women typically start to regain sensation several months after surgery and that the feelings can continue to develop for up to two years.

How does a woman feel after a double mastectomy? ›

Right after the surgery, you will probably feel weak, and you may feel sore for 2 to 3 days. You may feel pulling or stretching near or under your arm. You may also have itching, tingling, and throbbing in the area. This will get better in a few days.

What are the psychological problems derived from mastectomy? ›

Treatment for breast cancer typically involves invasive surgical interventions, and in addition to the difficulties intrinsic to experiencing a cancer diagnosis and treatment, undergoing mastectomy can have profound impacts on mental health and self-esteem due to feelings of reduced attractiveness or femininity, ...

What are phantom feelings after mastectomy? ›

Patient may have pain and discomfort, itching, pins and needles sensations, tingling, pressure, burning, and throbbing. The syndrome can start even after more than one year of surgery. The incidence varies across different studies, ranging from approximately 30% to as high as 80% of patients after mastectomy.

How can I feel beautiful after a mastectomy? ›

There is such a thing as 'good enough'. Eat well and train constantly. Promoting physical well being can improve your emotional well being too. Running can give you an energy and mood boost, and eating well tells you you're worth looking after.

How to be intimate after a mastectomy? ›

Your breasts might be an important part of how you and your partner are sexually aroused. You can look for other ways to achieve this together. Try stroking or massaging other sensitive parts of your body. You could try wearing a bra or camisole in bed to help your confidence if you prefer.

Why am I so tired after a double mastectomy? ›

You may feel fatigued after surgery. This can be due to the stress on your body, any pain after surgery and the time it takes to heal. Having a general anaesthetic can also affect your energy levels.

What is the divorce rate after a mastectomy? ›

Results: Approximately 11.1/1,000 of married breast cancer survivors experienced divorce after cancer diagnosis. Younger age, lower education, and being employed at diagnosis were associated with divorce.

How do you mentally deal with a mastectomy? ›

You're not “less” of a woman because of a mastectomy (or hair loss)! It's OK to grieve. You experience a loss of a close friend when you undergo a mastectomy, so a period of sadness is normal. As you look in the mirror at your chest, speak kind words to yourself—just like if you were comforting a girlfriend.

What do people look like after a mastectomy? ›

After a mastectomy

The scar will be across the skin of the chest. If you have surgery to the lymph nodes, the scar will also be in the armpit. At first the scar will be firm, slightly raised and red. Over the next few months, it will flatten and fade.

Does having a double mastectomy affect your hormones? ›

People who undergo total mastectomies lose nipple sensation, which may hinder sexual arousal. The sudden drop in estrogen production caused by bilateral prophylactic salpingo-oophorectomy induces early menopause (this is also called surgical menopause).

How does mastectomy affect quality of life? ›

It has been reported that mastectomy has negative effects on body image and QoL compared to other treatment types. A previous study on the body image level of women after mastectomy showed that 44.4% of women had a moderate level of body image (22). This outcome of prior study was consistent with the present study.

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